Make your own free website on
I am not a doctor.  So therefore, I am not stocked with doctorly intelligence.  This site is not a medical site, it is only a personal website I felt like posting because I wanted to help people get through all this medical stuff.  If you know that any of this information is not true, then please let me know.  I am not responsible for any bad things that happen because of this website (such as you choking on a carrot because you are so amazed at how absolutely thrilling this site is!).

Anytime you send me anything, you are automatically giving me permission to use it in anyway that I want unless you specifically and clearly tell me otherwise (clearly = a 7 year old can understand).

ALSO: I understand that some of you might think that I am one of those people who only thinks about my syndrome and all the things related to it night and day.  I would like to make it clear that that is not true.  My life does not revolve around surgeries, etc..  I already hear more about that stuff than I would like.   I know many of you out there feel the same way, so I just wanted to make sure that I wasn't giving the wrong impression. I mean, come on!  Pfieffer's Syndrome is a part of my life, but hardly my WHOLE life!  I'm sure many of you know what it's like when people always refer to us as "special children."  It's like we're bound to each other with some kind of "special children like us" link.  I hate that. It's like no other part of "us special children" matters except for the "special" part.  I don't know about you, but I am an individual, and I'd like to stay that way.  I'm sure you would too.  EVERYBODY'S special!
   I didn't create this page to "unite special children".  I made it simply because I wanted to help those who are going through RED stuff.  Are we clear? Good. :)